{"id":1668,"date":"2009-08-10T08:47:27","date_gmt":"2009-08-10T15:47:27","guid":{"rendered":"http:\/\/www.tcnjmagazine.com\/?p=1668"},"modified":"2009-08-14T10:46:55","modified_gmt":"2009-08-14T17:46:55","slug":"autism-research-advocates-with-ties-to-tcnj","status":"publish","type":"post","link":"https:\/\/www.tcnjmagazine.com\/?p=1668","title":{"rendered":"Autism Research Advocates with ties to TCNJ"},"content":{"rendered":"<p><span style=\"font-family: Times New Roman; font-size: small;\"><img loading=\"lazy\" decoding=\"async\" class=\"attachment wp-att-1670 alignleft\" src=\"http:\/\/www.tcnjmagazine.com\/wp-content\/uploads\/2009\/08\/autism-hands-v2.jpg\" alt=\"autism sidebar art\" width=\"215\" height=\"250\" \/>Until the middle of the 20<sup>th<\/sup> century, autism was a poorly understood disorder lacking even a name to identify it. Today, however, it is known to affect millions of Americans and is the subject of groundbreaking research.\u2018<\/span><\/p>\n<p><span style=\"font-family: Times New Roman; font-size: small;\">In 2007, the federal Centers for Disease Control and Prevention released data showing that about 1 in 150 eight-year-olds in the United States has autism spectrum disorder, a range of developmental disabilities that affect peoples\u2019 ability to communicate and interact. <\/span><span style=\"font-family: Times New Roman; font-size: small;\">That same study found that New Jersey had the highest rate of the 14 states covered by the agency\u2019s Autism and Developmental Disabilities Monitoring Network, with more than 10 cases per 1,000 eight-year-olds in 2002. Health professionals in the state say the higher rates here may simply reflect better record-keeping, as well as a high level of public and professional awareness of the disability. Indeed, several of the country\u2019s most prominent advocates on behalf of people with autism spectrum disorder are from New Jersey.<\/span><\/p>\n<p><span style=\"font-family: Times New Roman; font-size: small;\">U.S. Rep. <strong>Chris Smith \u201975<\/strong> co-founded the Congressional Autism Caucus in 2001 to increase awareness among lawmakers of autism spectrum disorders, to disseminate information on initiatives regarding the disability and to promote research and support for families. He is also the author of several bills that support autism research and training initiatives, while also creating family and community supports.<\/span><\/p>\n<p><span style=\"font-family: Times New Roman; font-size: small;\"><strong>James Ball \u201984, MA \u201989<\/strong>, EdD, BCBA is the co-chairman of the Autism Society of America\u2019s panel of professional advisers, the director of clinical services for New York Families of Autistic Children, as well as the president of his own firm, JB Autism Consulting.<\/span> <span style=\"font-family: Times New Roman; font-size: small;\">Ball, a New Jersey-based behavior analyst who works with organizations, schools, and families on training, home support services, classroom design, and behavior management, is one of the country\u2019s leading advocates for adults with autism.<\/span><\/p>\n<p><span style=\"font-family: Times New Roman; font-size: small;\"><a href=\"http:\/\/www.tcnjmagazine.com\/?p=1658\"><em>Click here to read how TCNJ is leading the way in improving the lives of people with autism, and preparing teachers to work with this population.<\/em><\/a><br \/>\n<\/span><\/p>\n<p><span style=\"font-family: Times New Roman; font-size: small;\">\u201cWe don\u2019t know why it\u2019s occurring, but it\u2019s not going away,\u201d Ball said. \u201cThere is a wave of kids who are going to be adults and the adult system is mediocre at best, based on funding. We need to approve legislation to improve the lives of adults in areas ranging from housing to transportation to access to jobs.\u201d<\/span><\/p>\n<p><span style=\"font-family: Times New Roman; font-size: small;\">And many New Jersey families have become advocates in their own right.<\/span><\/p>\n<p><span style=\"font-family: Times New Roman; font-size: small;\"><strong>Jim Hedden \u201972<\/strong> and his wife, Mary Jo, recently formed the Joseph I. and Immaculate A. Fruscione Schlarship Endowment Fund at the College to support a Mercer County resident who is a special education major interested in teaching autistic children.<\/span> <span style=\"font-family: Times New Roman; font-size: small;\">The scholarship was established to honor Mary Jo Hedden\u2019s parents, who valued education highly and were concerned about the education and quality of life of a granddaughter with autism.<\/span><\/p>\n<p><span style=\"font-family: Times New Roman; font-size: small;\">\u201cWe have seen how caring education professionals impact an autistic child\u2019s development and would like to play a small part in making the community aware and sensitive to their needs,\u201d Mary Jo Hedden said.<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Autism, which is known to affect millions of Americans, is the subject of groundbreaking research. Several of the country\u2019s most prominent advocates on behalf of people with autism spectrum disorder have ties to TCNJ.<\/p>\n","protected":false},"author":19,"featured_media":1670,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[10,28],"tags":[],"class_list":["post-1668","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-online-exclusives","category-september-2009"],"acf":[],"_links":{"self":[{"href":"https:\/\/www.tcnjmagazine.com\/index.php?rest_route=\/wp\/v2\/posts\/1668","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.tcnjmagazine.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.tcnjmagazine.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.tcnjmagazine.com\/index.php?rest_route=\/wp\/v2\/users\/19"}],"replies":[{"embeddable":true,"href":"https:\/\/www.tcnjmagazine.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1668"}],"version-history":[{"count":0,"href":"https:\/\/www.tcnjmagazine.com\/index.php?rest_route=\/wp\/v2\/posts\/1668\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.tcnjmagazine.com\/index.php?rest_route=\/wp\/v2\/media\/1670"}],"wp:attachment":[{"href":"https:\/\/www.tcnjmagazine.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1668"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.tcnjmagazine.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=1668"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.tcnjmagazine.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=1668"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}